Day -4

I slept soooo much better last night.  I asked the nurse for Ativan at around 10:30.  I fell fast asleep by 11:00 and slept until my 3:30 am vitals check and blood draw.

The eye mask lets the nurses not work in the dark, and lets me still stay in sleep mode.  I went right back to sleep.

Our room is all setup now with our photos, PS3 for watching movies or playing games, our essential oil diffuser (is approved by staff), sound machine, snacks...we are all moved in for our long stay.  I'll take a photo tomorrow.

Today's schedule is almost exactly the same day as yesterday only this time, we are in my permanent room 1665.  The 16th floor is the transplant floor.  The nurses up here are so well versed with what Dr. Burt wants, there are rarely ever any issues.  The view isn't bad either. :)

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Saline and Mesna (the bladder protector) run 24/7.

Woke up for the day...

6:00 am - EKG, vitals, bathroom break, brush teeth, gargle salt water, wash face, get dressed, order breakfast.

7:15 am - lasix again (pee, pee, pee)

8:45 am - protonix with my food (heart burn medication)

9:00 am - Dr. Burt came in to check on me. Heart monitor can come off!!!

Breakfast: French toast and hash browns, had very little appetite.

Morning coffee treat!

9:15 am - Zofran (anti nausea), mesna (bladder protector)

9:20 am - vitals and weight check.  No more halter monitor either!!! Goodbye five extra chords!

9:30 am - Ativan (sleepy maker), levothyroxine (thyroid med), compazene (anti nausea med).

10:30 am - amend (antinausea meds)

11:45 - Cytoxan (this runs for 2 hours)

1:15 - rATG premeds (IV Benadryl, 1,000 mg IV solumedrol)

12:30 - Ativan (for nausea)

12:45 - rATG - here's that ugly rabbit again.

3:00 ish - lunch, chicken quesadilla, Zuchini, squash and peppers.

4:05 pm - lasix again (the pee maker)

My after chemo treat for the day.

6:00 ish - vitals check 

7:00 - a lite dinner time (broccoli cheddar soup, and a garden salad.

A client texted with an issue so I had a few minutes to login to her computer and help her.

9:00 - lasix again (pee pee pee)

I took a sitting shower since I'm on so many drugs I can't risk falling. If I do fall, I have to get everything checked to make sure I'm not bleeding anywhere.  A brain bleed would be horrible at this point, so no falling!!!

11:30 - Ativan and bedtime!

Thanks for all the love, prayers, and encouragements!  :)

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Encouraging texts from today:

"You smiling reminds us that YOU are not the pain and discomfort you're in.  

"Your smile reminds me that who you are isn't your present physical circumstance."

"Sounds like you are rocking this thang!"

"Wow this sounds rough and awful. But you look beautiful :). Praying you are constantly renewed to keep going and fighting through it."

"I love your view."

"Thanks for the updates and thanks for letting God use you to encourage others as we watch you walk this difficult journey. Praying!"