Waiting...

Now, we wait.  I just finished one of last few IVIG treatments I hope to ever have.  The pain that goes with this disease and treatment regimen is not easy.  Jesse just worked on multiple charlie horses throughout my body that all came on at the same time.  Painful doesn't even describe it well.

He put the number of days until each event happens on our refrigerator tonight.

The reality of our path is very real as we continue to make preparations for this life changing procedure.