The transplant trip has arrived. We woke up this morning at 5:00 and began our journey to Chicago.
We aren't morning people.
My IVIG was 2 weeks ago but my body is already acting like I need another dose. My hands were so swollen this morning and the pain and weakness in my legs was much worse. This is likely a major change in my disease process. I likely need to increase my IVIG infusions to every 2 weeks. If I were to do that, I'd be sick, ALL THE TIME!
We drove to my brother Jason's house and he drove us to the airport (Thanks Jason). We grabbed some breakfast and made our way to the plane.
We've unpacked a little for our 2 night stay in the hotel.
Tomorrow, 3:15 central time, I will be getting my PICC line placed in my right forearm. Then Thursday morning, at 7:30 AM, I'll be admitted to the hospital to begin the transplant!
Four years with CIDP, countless IVIG infusions, an entire year of being sick that I'll never get back...It's been a full year from when I sent in my application to transplant...what a whirlwind it has been.
GOODBYE CIDP!!!!!!!!!!!!!!!!
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