Being home is a lot of work. My body aches everyday like I've done an extensive workout at the gym.
We are all still getting used to this "new" normal. What it means for mommy to need to wash hands all the time and stay away from lots of people.
This was my view for the past week and a half. Thanks to Jesses Aunt & Uncle for sharing their condo with us, we were able to be together at the beach, the boys got to enjoy the sand and waves and I was able to sit, listen and heal. Such an awesome way to end our transplant journey. My brother Caleb and his family joined us for a week. He is also the one who made my video. At the end of our time at the beach he said, that was the exclamation point to our transplant adventure, a good way to end it.
Next week, I see my PCP and will be talking about physical therapy and massage as I heal. My muscles ache so much each day. My nerves are trying to heal and this is very painful at times.
So far, my blood work has all been great! All in all, my recovery is going well. It's lots of work. I can still remember what the constant CIDP electrical surges felt like. The fact that I can feel some on my fingers and feet, amazes me!
I've had to explain this sensation a few times now. This is what I've come up with, imagine that you're wearing 5 pairs of socks and gloves. You go to pick up your cup, but can't feel it, you feel the pressure of it as you squeeze it, but you can't feel the cup. Now imagine that someone just took the socks and gloves off! You can now feel the sensation of the cup. After not feeling things for 4 years, being able to feel anything is amazing!!!
My last IVIG treatment was 53 days ago!!! I can't even tell you how awesome this is for me and my family. If you haven't seen my video, go here and watch (http://youtu.be/mxTq3tz1yeY). IVIG saved me in one aspect but it destroyed me in another.
This is hard work but so worth it to be able to live again. :)
2 comments:
Very Well done Rachelle. I mean The Video. I have been following you as you know for a while now. I am so happy you were able to get the procedure and get your life back. Know that I am not the only one. To be with your family again I'm sure is great. But it will get better!!! You go out there and live your life like you never did before. You Go Girl <3
Keisers in San Antonio are thrilled...and still praying...for your progress. Big Texas hugs!
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