We're going! No we're not, yes we are!!! No we're not...Yes We Are!!!

We've been on and off for several weeks now.  It's been painful.  Today, the day before we are scheduled to fly to Chicago, I received my self pay contract. The hospital will give a 40% discount!!!  We have to pay $2,100.00 up front and if we go under that, we will get money back.  If we go over that, we will have to pay more.  The good news is that this is the typical/average amount billed for the testing I'll be getting done.

So we fly out tomorrow night at 5:20, and arrive in Chicago at 6:30.  We will probably get to the hotel by 8.

Wednesday is a slow start as my appointment with Dr. Burt isn't until 4:30. Thursday is now a free day (this was going to be a day of blood draws, spinal tap, MRI) since insurance isn't paying, we are waiting on all those tests.  Friday at 7:30 AM, I get to enjoy some electrocution again with a NCV & EMG.  The NCV, tests the nerve velocity.  The EMG, test the muscle strength.  Then at 8:30, we meet with Dr. Allen to discuss my results. Then we fly home Friday afternoon at 2:30.  We will arrive in Baltimore around 5:30.

It isn't likely for us to get an official acceptance into the trials until Dr. Burt and Dr. Allen have a had a chance to discuss my case. So we are likely going to have to wait a week until we know.  More waiting!!!!!!

So that's the plan in an abbreviated form.